Keeping in Touch with Emma

Emma's Blog!
Many of you are looking for and asking about the blog that Emma has started.

It is http://www.surgerystinks8.blogspot.com/. She has come up with the blog all by her very own self. What she writes is what she is thinking which is so cute and hilarious. I don't help her with grammer or punctuation. (My mother was an english teacher. I have no excuse.) I just get her set up on the computer and she writes it herself.





Enjoy!!

Breaking News (as in breaking my heart)

Today... Monday... always the day, the big dance, the show.

Emma and I showed up at Primary Children's this morning for her treatments. I was so excited because we were only there for Chemo, basically in and out in an hour. I could handle that, Emma could eat (no fasting for tests) and we were happy.

Dr. Phil (seriously, but not the real Dr. Phil) came in and checked on Emma. She said she was happy, but gassy (quite hilarious description) and hungry.

The doctor then turned to me and said, "Well, we probably need to talk." The blood instantly rushed to my face as this statement brought back terrible memories of two specific occasions. I mean when has, "Well, we probably need to talk," ever meant anything good?

The first of these occasions was when I was a sophomore in high school. I was dating a severly attractive boy (he could bench 175, that was a lot). His name was Brad (the coolest name eva') and we were H-O-T! Anyway, one evening he takes me on a drive and completely unbeknownst (yes, that is a word) to me, he was breaking up with me. I mean usually I could tell if we were drifting apart from as a couple, or I was the one doing the dumping, but no! He said, "I think we need to talk," and WHAM (not the singing group) it was over. Heartbroken.

The second occasion was just a couple of weeks ago. Dr. Graham called to let me know the results of Emma's blood draw. She had been sick. I was expecting something... but not that! Dr Graham said, "We need to talk, (this sentence is becoming a theme here... see?) You need to sit down." To which I responded, "I'm hanging up now." At which time WHAM (again, not the singing group, however I would like a reunion)... Leukemia.

As you can see this "talking" is not a good thing for me.

Anyway, Dr. Phil said that Emma has philadelphia chromosome translocation . Long story short (click on the link if you want some biology) two chromosomes (#9 and #22) have cross breeded, which is against the rules! This makes it harder to treat leukemia. These two cells had an affair (shame, shame) and as a result have caused lots of mutant DNA throughout her cells. In the end, Emma will need a bone marrow transplant. In the beginning (I act like it was so long ago) this is what were so thankful she didn't need.

Her siblings (all five of them, thank goodness for proliferation) have now been tested to see if they are a match (we will know the results in two weeks). They each have a 25% chance that they will match. No this does not mean that we have a 125% chance of matching. Come on, where were you during statistics? But, with so many siblings, the chances are obviously higher that a match will be found.

This is what we are praying for... that a match will be found within her siblings. Please, please, I am pleading with you (I have lost all pride) to join me in prayer as we ask our Heavenly Father to help us through this time.

Of course it is late at night. I can't sleep and everything seems darker than it really is. The light will come tomorrow. The christmas trees and the season give me hope. I will head over to Emily's house tomorrow because her house sparkles and it makes me happy. You all make me happy and you all give me hope.

Tears... amen.

-Lana

Monday, December 8, 2008

We left for Utah after church and had a nice visit with our friends Beverly and Keith. My neighbor, Diane, chauffered us down which was very comfortable.

Our treatment wasn't until 1:30 which makes it hard because Emma can't eat before and since she's on roids she thinks she's starving to death. They got her in at 11:00 which I so appreciated because then she could eat.

She was incredibly brave. Last week it took 45 minutes to access the port in which she gets chemo and they draw blood. This week it only took 10 minutes because she wasn't fighting it so much. It actually doesn't really hurt her, she just works herself up and thinks it's going to hurt.

The snow started about 8:00 am and never let up which means we're staying another night in Utah. We heard the roads to get home were nasty and to tell you the truth, Diane doesn't drive after dark.

We ended up spending over six hours at the hospital. Emma's red blood count was so low that she needed a blood transfusion. Transfusions take several hours so Emma painted and did crafts while Diane and I visited and made fun of celebs in the People Magazine. Can you say BOTOX?

Hopefully we'll get home tomorrow. Until then, Jeff will have the fort held down (hopefully)!

-LANA

Welcome Home

I am so happy to be home! Emma and I arrived home on Monday.

We actually left the hospital Friday afternoon and went to stay with my cousins in Draper. That night Emma had a bloody nose that lasted for 35 minutes (chemo patients aren't supposed to bleed for more than 10 minutes). I was so nervous we would have to go back to the hospital because the bleeding lasted so long, but as we loaded into the van, the blood stopped. Thank goodness!

We went in on Saturday for a blood draw, had Sunday off and then went in Monday morning for Chemo and more blood draws. Also she had another spinal tap and bone marrow aspirate. We haven't got the tests back from either of those, and I am quite anxious to hear if there is leukemia in the bone marrow. We're wishing no!

So we got home Monday night and it was so great to see the family again. Ty kept saying I missed you Emma and Carly kept staring at me and then cuddling and then staring again. The house was decorated with a huge Welcome Home banner from her school and lots of fun activities, treats and gifts awaited her arrival.

She's loving the activities because she's bored sitting at home and she loves the treats because she thinks she's starving to death (the meds make her hungry). She can eat!

For the most part Emma is optimistic and happy. Every once in awhile she'll cry because she knows she's going to lose her hair or she'll be disappointed that she's missing out on something at school or church.

Amazing people and amazing things have happened in the last couple of weeks. I can't believe the outpouring of service, love and prayers.

Thank you. Thank you. -Lana

With Grateful Heart

With grateful heart I write this post to say thank you for all of your love and support. We have had a heck-of-a-week and it hasn't even been a week.

I am grateful for my family. The love that I receive from them.
I am grateful for my friends and the extra support that they give in time of need.
I am grateful for medicine and the miracles it can perform.
I am grateful for Emma and the extended "date" that we've had these last couple of days.
Mostly... I am grateful for my Heavenly Father and Savior Jesus Christ. It is through the people listed above that He has blessed me. It is through the hands and spirits of His children that I am buoyed up and can continue forward.

My heart is full and my tear ducts are exhausted as I say thank you for everything.

-Lana

Mutiny in Primary Children Rm 4408

So apparently we are in the protesting phase. She's NOT happy. This morning she had to take 6 pills and she gritted her teeth and screamed.

At times like these I go back and forth between trying to be understanding and loving to wanting to ground her. She's old enough to understand and to realize it must be done, but then again, who wouldn't want to throw a fit.Today they had to change the dressing on her portacatheter (don't know if I'm saying it right) and I think that was painful for her. Bandage burns are the least of her worries, but they hurt.

No fevers for almost 24 hours which is a true blessing. They were so high and made her super uncomfortable and cranky.

The pee has gone back to it's original color which cuts down on the bathroom excitement, but we know she's clearing out the drug. Have I told you that her waste is a biohazard? If we come into contact with it, it must be rinsed off immediately. Which means I have to wear rubber gloves and make sure that Emma and I both stay clean. Crap, where's my HAZMAT suit? I swear I picked one up at DI.

Lots of well wishers and love. I feel it coming from every direction.

Many, many thanks.-Lana

Utah is Beautiful but I'd rather be in Idaho

Another day at Primary Childrens. Such nice people, super great doctors and nurses. Really wierd oncologists. What a perfect combination!

Emma had surgery yesterday (Sunday 23) and everything was successful. They did the spinal tap and found no bad cells, but put chemo in the spinal fluid to kill any just in case. The bone marrow draw was full of leukemia and looked very text book for what she has. They also put the catheter port in just below her left breast and it's plastic not metal. I was sad she wouldn't be setting off any metal detector alarms. They put her on narcotics which made her super strange and kind of funny, but also quite bossy and angry.

The port area is in a lot of pain today and she's had a headache, back ache and serious discomfort. Her left hand and both of her feet are super swollen. The hand looks like you took a rubber glove and blew it up like a balloon. It's really cute, but also sad. The swelling should go down soon. I think it's like having a baby. The day you deliver you don't feel as bad as the day after you deliver. I'm hoping tomorrow she's a bit better and stronger.

They gave her her first round of chemotherapy this evening. One has a name that starts with a V, one is a steroid, and the other is called donnarubison (I'm sure I spelled it wrong). I remember this one because I think it sounds like someone's name. Anyway, it's pink and they call it "little red." It makes her pee pink. Princess Pee I call it.

Jeff is catching a ride home tomorrow with Brek & Emily. I will miss him, but am happy he'll be with the boys. I think if I were them I would feel lonely... people talking about their family, knowing their sister has cancer, etc.

It doesn't sound like we'll be home until next Tuesday. Can I last another week?

Thanks for your prayers and encouragement. Pray that the chemo will work because if it does, she should have a full recovery! That's the hope and that's the plan.

-Lana

Ps. Remember how I was getting super buff and physically fit? Well I just climbed up to the fourth floor and I think just possibly I might pass out. Atrophy bites!!

I Believe

My beloved brothers and sisters, I testify of angels, both the heavenly and the mortal kind. In doing so I am testifying that God never leaves us alone, never leaves us unaided in the challenges that we face. “[N]or will he, so long as time shall last, or the earth shall stand, or there shall be one man [or woman or child] upon the face thereof to be saved.

Always there are those angels who come and go all around us, seen and unseen, known and unknown, mortal and immortal.

It's 12:44 am. Nights are very difficult. I am scared. Pray for many angels.

Thank you.

-Lana

Angels from Heaven Here on Earth

So... where do I start?

As most of you have heard, I took Emma to Primary Childrens yesterday 11/21. Dr Graham called me and wanted some more blood from Emma because she had spiked a high fever the night before. The blood showed high levels of white blood cells and so we came to Primary to comfirm Leukemia. After more tests, Leukemia is what she has. It's hard to see her suffer as she's in a lot of pain, but I'm excited to have a plan of attack and know what we are dealing with.

She has ALL which is the best kind of Leukemia to get, meaning it responds the best to the treatment.Basically what the drs are going to do is give her chemotherapy until there are no messed up white blood cells. I asked how long this would take and the standard gold star treatment is 2 1/2-3 years. The time frame on this disease causes me more stress than anything. I have no doubt it will be treated properly and will be cured, it's just disheartening that it takes so long. The doctor (who is quite the little oncologist nerd, who else would I want on my team?) said for the most part, she will still go to school and do normal things.

She will be going in tomorrow for a spinal tap (remember the movie?) and a bone marrow draw. This will determine how aggressive the treatment we will start off with. If it's in her spinal fluid, they will be very aggressive. Her high white cell count puts her at a high level of aggressiveness (is that a word?) already so I don't know if it will be any different. She will receive her first blast of chemo tomorrow.

Also tomorrow, she will get a small disc put under the skin above her chest. This will hold a catheter inside of her that will be used to draw blood and inject chemo. I guess you only see a small buldge under her skin when it's all put in. As far as I know it is metal which will be quite fun because maybe she'll set off metal detector alarms and also she can match Jack and Ashton.

She seems to be in high spirits. She was in a lot of pain this morning, but we busted out the oxycotin and she's been out, I mean totally stoned, hilarious! I've said it before and I'll say it again, I love narcotics.

We will most likely be here for a minimum of another week. The food's not too bad and maybe we'll get something special for Thanksgiving like Cafe Rio (it's just down the street).

A super huge shout out to all who have called and expressed concern. Please, please pray for her to have strength and be about to fight this. Also please pray for me to have peace as I am having a real struggle finding any calm in this storm.

I love my angels that are surrounding me and am thankful that they were plucked from heaven to be placed here on earth to help me.

I will write more when I know more.-Lana

ps. Love flowers, but can't have them in the room as they might carry germs.

Hey, I didn't make the dumb rule. Dont' shoot the messenger.

Digitus Impudicus

FYI

In 2001 a United States appeals court ruled that the digitus impudicus ("impudent finger") is protected speech.

In Western cultures, the finger (as in giving someone the finger) is a well-known hand gesture made by extending the middle finger of the hand while bending the other fingers into the palm. A known variation includes extending the thumb as well (my personal favorite).The gesture is also known as "the bird,"

"flipping the birdie," the "highway salute,"

"you're number one in my book," (Jeff's fav)

"The New York Hello," "concert C," (haven't heard of this one) "sticking your middle finger up," "The One-fingered Salute,"

"The Canadian Turn Signal," (Brek???) or "flipping someone off."

When both hands are used, it is known as the "double-barrel salute" or the "double deuce." (this is the one I've been practicing). A variation of the gesture is also made by showing someone the back of the hand, with three fingers extended, and telling the recipient to "read between the lines," or "peel the banana." A more comical approach is to wiggle all five fingers and query, "Do you see these?" retracting all but the middle finger and state, "It's a whole flock of these." A distinct reference to the aforementioned "bird." (Ha, Ha, Ha, Ha, Ha, sooo funny.)

Come on, if we knew the history behind the bird, we'd be proud to flip it. Think about it, every state has an official bird (do you know Idaho's?) even the United States has an official bird. There are thousands (well at least hundreds) of people who study ornithology (the science of birds). Bird watchers, bird photographers... people can't get enough of "the bird."

The bottom line about my personal relationship with "the bird" is that it's my friend, my ally and my constant companion. I count on it to relay the messages I have a hard time putting into words like, "I love you," "BFF," "Let's always stay true," "Stay gold Ponyboy," (the Outsiders) "We are the World, We are the Children," or on another spectrum, "I'm watching you," (two fingers pointing to my eyes, two fingers pointing to your eyes, repeat, repeat), "Get a life," "Get real" or "Honestly" (said with much sarcasm).

See... "the bird" can be used on many occasions.

To be quite frank, I've never met a bird I didn't love!

Ps. What's your favorite bird?

So many fun giveaways

Commissioned Watercolor Portrait GIVEAWAY!!!!

Commissioned Watercolor Portrait GIVEAWAY!!!!

Aprons

Would love to win this apron http://inevergrewup.net/giveaway-14-something-pretty-for-mommy-hostess-aprons/.
Maybe I could pretend I keep house.

A big Behind

I get more and more behind and keep putting my writing of menu details off. Anyway, I'll tell you a couple of things we had to get us to the point we are at now... day 22.
We have had Hawaiian haystacks (minus the pineapple which makes them non-hawaiian haystacks), chicken salad sandwiches (again), baked potatoes, spaghetti, Viola chicken and cheese pasta (in the freezer section, so good), chicken nuggets and french fries, yummy salads with lettuce, cheese, croutons, cucumbers, etc., pizza an IOU from the neighbors, cold cereal, waffles, french toast, and some left overs thrown in there.
That gets us to this point and I have been really good about not buying groceries. I even went to the forbidden Walmart and only purchased a few gifts for Ty's B-day party.
So proud.

GROSGRAIN MINI STORE OPENING NOVEMBER 6!!!!! AND BIG PREVIEW GIVEAWAY!!!!

GROSGRAIN MINI STORE OPENING NOVEMBER 6!!!!! AND BIG PREVIEW GIVEAWAY!!!!

Friendship is Good

Friendship improves happiness and abates misery by doubling our joys and dividing our grief.
-Joseph Addison

Thank goodness for good friends.
I am so grateful for them.

10 and 11

Well it's been very uneventful with the 30 day challenge and quite frankly I cheated, but I'm not falling off the wagon completely. Yesterday we ended up having leftovers which was just fine, however, I did go to the grocery store and for the most part kept myself in the egg, dairy aisle, then I saw the cold cereal. It is incredibly difficult to live in this house without access to cereal, so I did purchase 5 of the big Malt-o-Meal bags, and I don't really feel bad about it. But I am confessing!
Tonight... Ramen! Gross!

Quilt Giveaway

There is a great quilt giveaway at the blog http://pigtailsandsnails.blogspot.com/ I would love, love, love to win!

Seven eight and nine

On with the challenge. It's getting so boring, but I do have to admit that I am having to plan and think of dinner, therefore we're having it. Bonus! Anyway, day seven was spaghetti with rolls, day eight was Chickenbean tacos (I purposely left out the space between chicken and bean.) This recipe includes a can of chicken, two cans of black beans (drained) and taco seasoning to taste. It was very yummy served on flour tortillas with lettuce, cheese, sour cream and salsa. Tonight we had baked ziti which is basically just cheesy spaghetti so I was coming close to food collision by having pasta twice already this week. Again, I am flailing (is that how you spell it?). What to fix tomorrow. It will have to be creative as I am at a roadblock. It's possible it will be leftovers.

Days 3-6

So... one night, we ate baked pototoes (that I dug-up myself, thank you very much). That's the perk of living in the potato state. The next night we had shoppers chicken with left over potatoes (fried up by Stanley). Saturday we had French toast and hashbrowns and today we had chili with left over chicken. Tomorrow is spaghetti and garlic rolls and then I'm at a crossroads. Hopefully something comes to mind because otherwise we will starve. I guess there's always Raman!

Day 2

So, I don't know if I broke the rules, but maybe... kind of.

Anyway, I did go to the store today and bought a couple of things to do some crafting with. While there I purchased some Nutrigrain bars (on sale) and some chocolate chips (also on sale). I ended up spending about $30 total.

Tonight for dinner. Left over chicken. Fettucini alfredo (from a box). Salad. Left over pizza for those who didn't want chicken.

Tomorrow, I'm thinking shoppers chicken. Basically chicken with sour cream served with rice. I will also bust out the rest of the peaches we have in the fridge.

the very Beginning... a very good place to start

Well, I have been putting off starting this blog, basically because I don,t really know how to start it. Anyway, I'll give it a go and just start with today.
Jeff and I challenged each other yesterday to not go to the grocery store for 30 days except for milk, (I told him we could use powdered. He wasn't excited.) fruits and veggies and eggs. Everything else, EVERYTHING else, we make or do without.
So... he packed his little lunch today to go to work and so far (it's been a total of 12 hours) I have not gone to the grocery store.
I guess we'll see how we survive on our food storage, and I'm also excited to see how much we save. I am purposely putting this on my blog so I have to report every day or so. Hopefully this will keep me on track.
I am planning on making chicken salad sandwiches tonight (canned chicken, celery and grapes) garden carrots and lemonade.
Also, it's my mother-in-law's birthday so I will be making a vanilla cake and top it with peaches that I picked from my neighbors tree (with her permission... remember when I was 6?)