So apparently we are in the protesting phase. She's NOT happy. This morning she had to take 6 pills and she gritted her teeth and screamed.
At times like these I go back and forth between trying to be understanding and loving to wanting to ground her. She's old enough to understand and to realize it must be done, but then again, who wouldn't want to throw a fit.Today they had to change the dressing on her portacatheter (don't know if I'm saying it right) and I think that was painful for her. Bandage burns are the least of her worries, but they hurt.
No fevers for almost 24 hours which is a true blessing. They were so high and made her super uncomfortable and cranky.
The pee has gone back to it's original color which cuts down on the bathroom excitement, but we know she's clearing out the drug. Have I told you that her waste is a biohazard? If we come into contact with it, it must be rinsed off immediately. Which means I have to wear rubber gloves and make sure that Emma and I both stay clean. Crap, where's my HAZMAT suit? I swear I picked one up at DI.
Lots of well wishers and love. I feel it coming from every direction.
Many, many thanks.-Lana
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